Beth's Journey Through Breast Cancer
Shortly
after passing the 5-year anniversary since my recovery from breast
cancer, I started thinking about dedicating a corner of my site to
share some of my experiences about my journey.
If
you've come to one of my shows post-breast cancer, it's likely that
you've witnessed one of my 'public service announcements' where I tell
the quick version of the story of how I found this tiny lump in my
breast in late 1998. It was no bigger than a lentil and rather hard to
find but you could feel it.
I
went to my regular gynecologist and he too could feel it and so ordered
a mammogram. The results of that test showed nothing. My doctor advised
me to wait and watch and maybe not drink too much coffee. This was not
good advice.
What
I came to learn the hard way, is that anytime you can feel a lump,
regardless of whether or not you can see it on a mammogram, it is
essential that some other method of diagnosis be engaged to actually
determine that it is not cancerous.
Unfortunately,
many young medical students are trained to be conservative about
testing. It seems medical system we have in the US is often propelled
and dictated to by the insurance companies and the drug companies.
It's
true that further testing adds cost. If upon further testing it is
clearly benign one could argue that the test was "unnecessary". But the
cost of my surgery, chemo and radiation to my insurance company wipes
out any argument for "conservative testing".
Not
to mention the cost to my body, the stress, and all the difficulty of
coming through cancer! I would have happily paid for an ultrasound or
needle biopsy out of my own pocket had I known then what I know now.
We
"watched" through a few mammograms until this little lump was about the
size of a small grape. Finally my doctor suggested an 'ultrasound'
still with the attitude that it was 'probably nothing to worry about'.
This story happens over and over again.
Especially
with younger women who are not supposed to be as likely to have cancer,
doctors routinely discourage the kind of aggressive investigation into
lumps with a 'let's wait and see' attitude. So my mission has been to
say loud and clear—"if you can feel it and it doesn't show up on a
mammogram you aren't done looking for it!"

During
my ultrasound, the nurse had chatted with me amicably while putting the
gel on the instrument, pressing it into my breast and gliding over the
area where the lump resided. Then she gasped. There it was. A big dark
cloud that was now stage two and 2 ˝ centimeters. The sound of her
breath sucking back into her body will forever be remembered as the
moment I knew my life was about to change. Of course she was given no
permission to discuss what she thought she saw. So immediately she
pulled her smile back into place and became professionally 'vague' as I
started firing questions at her. "I really can't say…you'll have to
wait for the results to come from your doctor."
A
full 24 hours later I finally got the call from my doctor. In my shock
it didn't register to ask him why he didn't do this test earlier. In my
shock I just dumbly took in his words. Still vague. "I think we may
have seen something we need to have further checked out."

With
that he passed my case over to another doctor to do the biopsy. Within
a day or two it was absolutely clear. Stage two-breast cancer. These
final results came from the breast doctor who had done the biopsy. I
never heard another word from my gynecologist. I never spoke to him
again. I have no way of knowing how or if this affected him. Up until
now I've not dealt with my feelings about his abandonment of me when
the diagnosis became known. It has been going on eight years. So this
week as I write this for my new web page I am also writing a letter to
him and clearing that last piece out of my psyche. One of the many
lessons I learned through this passage has been that emotions that
become congested within us have a very subtle but negative effect. It's
funny that it's taken me this long to be ready to let him know my
feelings about the way his incompetence affected my life and future.


This
is one of the paintings I did while going through chemo. I was working
a lot with energy and other healing modalities in addition to western
wisdom. I pretty much did everything I could think of to compliment the
treatment I was getting. I think accupunture, massage, meditation, and
eating very healthy organic foods all were a part of my recovery.
I
want to walk you though some of the details of those difficult days
following my diagnosis. Of course my family and loved ones completely
surrounded me with love and support. My dear friend Annie Roboff (with
whom I've written so many songs) was my advocate throughout many
consultations with doctors, surgeons, plastic surgeons, oncologists,
etc.
I
was spinning out of control with indecision about who to pick for my
surgery, and follow up chemo and radiation….these are all different
doctors. I was thinking that I needed to jump on planes and meet the
best doctors in NY or LA to be sure.

Olivia
Newton John was also an angel to me during that time. I remember being
at a Japanese restaurant on a Sunday afternoon during those first few
days and having a meltdown. At that moment Olivia, who had, herself,
come through and survived the diagnosis of breast cancer, called me on
my cell phone. Just hearing her voice really calmed me down. She gave
me the home phone number of one of the top oncologists in LA who had
been her doctor. I dialed the number and spent the next 15 minutes
talking to this wonderful doctor. His advice saved me a lot of
unnecessary stress. He said that there were some of the best doctors in
the world at Vanderbilt University and I should stay right here and not
wear myself out running around the country looking for a doctor.
My team of doctors were truly incredible. Dr. David H. Johnson was my oncologist.
He
himself had survived very intense chemo when he went through
non-Hodgkin's lymphoma, which is the type of cancer that took the life
of my husband Ernest in 1994. So on many levels Dr. Johnson could
relate to patients going through this.
My
surgeon was Dr. Kelly at Vanderbilt University who performed a
lumpectomy and also a "sentinel node biopsy" which is a procedure that
involved shooting radioactive dye into the "tumor bed" (or under my
tumor) in order to get a picture of the order in which my lymph nodes
drained. I know. It sounds crazy! But it was a very good thing. In the
not so long ago days, doctors would routinely rip out all the lymph
nodes along with any removal of breast tissue. Long term complications
of this can be a condition known as "lymphodema".
For more information visit: The Lymphoedema Association of Victoria and The Lymphoedema Support Network.
It
would have been so difficult for me as a musician, guitar player, piano
player etc. if I had developed this condition. The lymph nodes provide
much needed drainage for lymphatic fluid, which goes all through our
bodies. With no nodes the fluid collects in the tissues and causes
outrageous and sometimes dangerous swelling of the limb.
Fortunately I only had to have four lymph nodes removed to determine whether or not my cancer had spread.

Having
the sentinel node biopsy was excruciating. They had to do this
procedure without any anesthesia, as that it would have rendered the
radioactive dye useless. Then, in surgery, they shine a light on the
lymph nodes under the arm of the breast with the tumor. Fluid from the
breast drains into the lymph nodes in a certain order. The first node
that it drains into is called the "sentinel" node. So they remove that
node and the next three or four after that. During surgery they do a
quick biopsy on that sample of nodes. If it's not in the first one it's
a very very good sign that the cancer has not spread. I got to wake up
to that great news and the fact that the brilliant Dr. Kelly so
artistically performed my lumpectomy that the scarring would be
minimal. Considering the days preceding the surgery, where I had to
prepare myself for the possibility that they would have to take the
whole breast and maybe my lymph nodes on that side, I was overjoyed.
Three days before I was finding out about all sorts of options for
reconstruction or plastic surgery. One procedure involved moving some
of my back muscle into my breast cavity. Annie was getting all the info
on that one as I sat in a daze trying to figure out if my back needed
to be scratched would I be scratching my breast? Whew!
So walking around with a healthy little dimple on one side has been a great relief!

I
love this picture. That's my son's hand holding the guitar with me. He
was an amazing help to me during those months even as my heart was
breaking for him. But he got to see me get well and that was very
healing for us both.
Going
through chemo was a different story. While I did tolerate it pretty
well, it was devastating. I was given AC which is adriomyacin and
cytoxin. This cocktail was typical for my kind of cancer. So I was
scheduled for three months of that and six and a half weeks of
radiation. Oh boy! And I thought I'd be putting out my new record!
This
painting is called "Day Three". Usually the third day after a treatment
proved to be the most difficult. Here I'm quietly visualizing white
healing light all surrounding me and healing my body. Sounds very "New
Age" I know…but it helped tremendously to feel that I could be actively
focusing my attention on getting better and feeling better. It's an
interesting experience of trying to regain control and learning at the
same time that the only thing there is to control is remembering to let
go.
The
record I had just completed was "Deeper Still" and it is ironic that so
many of the songs written, recorded and mixed on that record days
before I was diagnosed, had so much to do with the emotional journey
through breast cancer. In fact, the songs themselves were emotional
medicine for me as I healed through that winter.
I
felt a comfort that my creative spirit had prepared the landscape for
me on some level. What was pushed forward in my writing, preceded
events once again, just as it had with many of the songs on "Sand
&Water".

So
I sang to myself a song I'd written two years earlier as I sat on the
couch looking out the window…..as my hair disappeared with the leaves
on the trees that fall, growing back in with the new buds in the spring.
"Every December sky
Must lose its faith in leaves
And dream of the spring inside the trees
How heavy the empty heart
How light the hear that's full
Sometimes I have to trust what I can't know
We're walking to paradise
The angels lend us shoes
Cause all that we own we'll come to lose
And heaven is not so far
Outside this womb of words
With every rose that blooms my soul is assured
It's just like the song I know that's still unheard.
And every leaf of fire lets go
Melting in the arms of earth and snow
And if I could hold you now
You'd enter like a sigh
You'd be the wind that blows the answer to why
You'd be the spring filled trees of
Every December sky"
I
navigated that hard cold winter through my fear of death and through a
deep first hand experience of chemo, realizing so much more clearly the
pain my husband endured to try to buy more time during his illness. My
son and I both grieved again for his Dad, and from a different place,
ironically, lifting and moving out from under that grief when I started
to recover and get my energy and my life force back.

One
of the many 'angels by my side' that showed up in my life to guide me
through those treatments was Gabrielle Mittlestadt. I had known
Gabrielle through friends and her reputation as a divine being and
healer whose main medicine is cuisine! Gabrielle came to my house
during the first few days of treatment. She cooks incredible organic
and deeply nourishing food on a level that I cannot even describe. All
I can say is, it's not that "weeds and seeds" healthy stuff you have to
have the intestines of a carburetor to digest. Gabrielle has perfected
mouth-watering-meets-pure-meets-healthy food art!
Of
course, following my first chemo treatment the worst time to have
Gabrielle cooking in my kitchen—as my stomach was not exactly feeling
overjoyed to be taking in food? She was way ahead of me however and
prepared all sorts of gentle delicious magical "tastes of things" since
even the word "meal" had a profoundly nauseating effect on me.
One
of the elixirs that became a staple of my healing-soothing foods was
this broth that she taught me to make from kale. Don't grimace! Kale
would have been the last thing on my mind in those days. I always liked
it but many things I normally liked were meeting a brick wall in my
system during chemo.
Gabrielle's
broth, it turns out, was more that a comfort food with good properties.
It actually was a super duper liver supporting, natural cleansing and
replenishing wonder-soup! So I've formally named it
"Gabrielle's Wonder Soup"
Get a big bunch of organic kale. Fresh!!
Put it in a large stainless steel pot (get rid of toxic tephlon! Check the link to CHEC!)
Add a cup or two of water and put a good cover on the pot
The kale doesn't need to be submerged…it'll steam down into it
Bring it to a boil and let the kale steam and simmer on low flame for a while. 10 minutes or so.
If
you want to eat the kale you can just put a couple inches of water and
only steam a few minutes …still save the water to drink as it's got
great stuff in it!
If you're just making broth let the kale empty out it's flavor into the water and then you can discard the mushy kale.
To
this broth you add drops of Ume Plum Vinegar. This is to taste…so taste
as you go. It's pretty salty…so try a bit and taste your way to what
seems right. You also splash some toasted sesame oil into this brew.
If
you're going with the "eat the kale" version of this you'd splash Ume
Plum Vinegar first on the leaves to taste and then some toasted sesame
oil. Then for a really amazing thing you can add toasted sesame seeds
that have been slightly cracked.
The
Ume plum is one of the most powerful antioxidants on the planet.
Gabrielle had me go buy the ume plum paste just to get it into my body
during my recovery. But everyone would benefit from this amazing stuff.
Again, it's very salty, but powerful stuff! Great to just spread on
crackers and veggies too!
Vinegar
is fermented and that's not the best thing to put in the body during
treatment. I learned it's much better to stay with foods that keep up
the level of "alkaline" as opposed to "acid". Ume plum vinegar feels
and tastes fermented but it's not. So this was a great way to get my
jones and avoid balsamic vinaigrette, which was working against the
tide of my health.
Ok…so you make a slew of this liquid gold. I would sip it warm from a very fancy wine glass as if it were very expensive stuff!
I
still love having it and I'm convinced that my liver was greatly helped
during the onslaught of chemicals that it had to process. My recovery
time from chemo was record breaking! So if you're going through it
–consider the "Gabrielle's Wonder-Soup!
:)BNC

I'm
pictured here with some very powerful women! Amy McDonald to my right
is a survivor of breast cancer. To my left is Amy Sky who was producing
a CD for Olivia Newton John (also a survivor) and Mindi Smith who's Mom
died of breast cancer.
We had all sung harmonies on the project which partially went to raise money for breast cancer.
Some great organizations to contact:
Gilda's Club
Susan G. Komen for the Cure
breastcancer.org
Optimum Health Institute
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